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Adult with an Autism Spectrum Disorder (ASD)

Caring for an Adult with an Autism Spectrum Disorder (ASD)

Welcome

Just as each individual with an autism spectrum disorder (ASD) is unique, each lifespan stage has its own unique qualities, challenges, and possibilities. Caregiving responsibilities may change, but, caregivers continue to have responsibilities, whether adults with ASD are at home or on their own. These responsibilities may extend beyond the caregivers’ expectations of what their future held.

All adults want and need independence and the ability to live to the fullest extent possible. Adults with ASD may need some support as they find independence and freedom in all areas of their life. The caregiver role at this stage is to support the adult with ASD’s independence and to help him or her meet his or her needs. This may require more or less effort, responsibility, and challenge on the part of the caregiver, depending on the individual with ASD and his or her situation.

It can be challenging to relinquish control as children with ASD grow up. Caregivers often are so used to providing for, supporting, and accessing services, that as the child becomes an adult, letting go of this control can be challenging. As much as possible, adults with ASD should take the lead in meeting their needs and reaching their goals.

There are many possibliities for adults with ASD. Work, living independently, friendships, and other aspects that combine to create positive, fulfilling lives. To various degrees, depending on their level of functioning, adults with ASD may still need support from others to accomplish their goals. Caregivers of adults with ASD may be siblings, parents, or other caring individuals. No matter what the situation is, the caregiver is still involved in the adult with ASD’s life, supporting access to services, independent living, and quality of life.

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